- been on waiting lists for specialists since December... suspected diagnosis is hEDS, a degenerative condition which affects the connective tissues of the body... 

When a simple walk

Is an activity that

Has the ability

To injure your legs

You know something

Is not quite right

When every part

Of each of your extremities

Are strained by movement

And want to shatter

To pieces under the pain

While recovery is increasingly

Difficult to achieve

It doesn't leave much doubt

That your body's embarked

On a path to clear debilitation

So now finding a way to adapt

Is the supplemental challenge

You must learn to deal with

For losing your body's

Good usage isn't easy to accept

And aside the constant pain

Sadness and frustrations have

Ways of taking all breathing room