Current Mood:  surprisingly good... even though it was difficult painwise...

Current Music:  (youtube) 

 

NOTE:  2021 07 08  00H25 EST  Ramblings 566 - 




Ramblings 566

 

- sorry, long, and more of my medical journey... a lot to process... had first appointment with physiatrist today which was 3hrs... diagnostic process' finally begun... 

 

It actually went brilliantly well today

Well, aside the road works everywhere

Which blew out many stops before

The bus stop I needed to get to

To catch the second bus on my way

 

So had to walk down Belvédère avenue

Which is a pretty long stretch of a street

Did not expect this drastic bus route change

But made my snail-paced way to the bus

Which was pretty excruciatingly painful

 

At the centre itself, I had a very long way

To go through what seemed like endless

Vast corridors to get to my appointment

Because I was limping on arrival, I was

Offered a wheelchair.  Had I known...

 

And then on the way back, come to find out

They moved another bus stop on the route

And the bus passed in front of our faces

So more walking to catch another bus

And that one was diverted along the way too!

 

Final stop left me sitting by the side of the road

For a while, unable to walk, while my douce moitié

Went home some fifteen-minute walk away to get

His bike.  Then he picked me up, and he rode us home

Must say, this part was most exhausting all in all

 

So yeah, all of this walking made my legs suffer

Especially after all of these physical exams I had

Where all of my limbs were moved in all directions

Pulled, pushed, tapped for quite a while

So I was in even more pain after the appointment

 

However, the first appointment with this specialist

Went in a manner I did not expect at all

She and her resident were compassionate, personable

Kind people, every single one I saw today

And we're already on the start of a treatment plan

 

They listened, took notes, examined, discussed

All of it felt like they actually gave a damn to help

I felt no awkwardness at all, I felt respected

Not once did I feel like my credibility was in doubt

They readily accepted that my pain is very real

 

I left from there with the feeling that she's serious

About wanting to figure out what all of this is about

She agrees that the suspected diagnosis is a possibility

I have very many of the symptoms that fit the syndrome

But that'll only be found out by the geneticist's tests

 

In the meantime though, she's taking me on

I have more X-rays and a sonogram to start off with

Also, because of my hypersensitivity to all medications

She's prescribed me a series of vitamins and supplements

But medication too, if after two months those don't offer much

 

If the medication is started, it's already prescribed

At an initial minimal dose to slowly increase every two weeks

I'm also referred to physiotherapy to establish a routine

Of specific exercises which will reinforce my muscles

All while more importantly not injure myself in the process

 

There's also a procedure she called "infiltration" that's on the table

As a possible treatment plan, but she's giving me time to think on it

It's putting injections right into my joints which supposedly helps

To relieve the pain 'cause the anti-inflammation drug is directly

Introduced into the source of where it's coming from.  Not sure yet

 

I also met with another woman at the end of my appointment

Who presented me a few models of ortheses and compressive gear

Tried two models for the ankles, and I found it a little overwhelming

The straps, the velcros, the criss-crossing... the contraption

She understood, said there's no rush to make any decision now

 

(At my departure, this woman even pushed me in a wheelchair

All the way away from the centre and across the street to my bus stop!

It's quite a distance, but she was very happy to assist me.  Blew me away.)

 

So it's a lot, and I'm still processing it all

But it was absolutely fantastic nonetheless

I don't know if we'll be able to make this better

Still, I feel like there may be a possibility

And that's certainly not what I expected to feel today





Diary by F.i.in.e Moods The PoetBay support member heart!
Read 38 times
Written on 2021-07-08 at 06:37

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Lawrence Beck The PoetBay support member heart!
It sounds like you had a painful, exhausting day. What made it good was the hope that you were given. Perhaps things will begin to get better.
2021-07-08


Steven Riddle
Thank you so much for this wonderful poem.

I offer my hopes for your continuing journey and will be holding you in the light as it goes on.
2021-07-08



I see the words "personable" and "kind"; when combined with ostensible competence, they tell me you've got a gem there!

So sorry for your unforeseen walk. You describe well how uncongenial that was.

Wishing you all the best on this new phase of your diagnostic journey, and these (one hopes) auspicious first few steps toward effective treatment.
2021-07-08