- have always had pains in my joints since childhood... but since 2017, things have dramatically changed to where I have moments of immobilisation and incapacity to move... it's due to the syndrome I was diagnosed with in 2021 (EDS, type hypermobility), which involves hyperlax joints, connective tissues with too much space to move around, causing a lot of problems... since 2019, these immobile moments have become more and more frequent and it's not looking like this situation will improve... so it's a lot to come to terms with... and a lot on my mind... Thank you to all who've left comments on my previous posts recently, I'll respond soon... things are a bit hard at the moment... xx

Daily, from one moment

To the next, it starts and

Stops (but mainly goes on),

With movement, without,

And comprises of many

Levels of intensity.

It pulsates acutely,

It near-permanently throbs,

It sharply shoots down or

Up the bones of my limbs.

Sometimes it's a rubbing,

A pulling,

A pinching,

A blocking.

More recently were added

Sprains or subluxations,

Irritation, inflammation of

Cartilage, ligaments, tendons,

Injuries at very little effort.

And often, it all happens

At the same

Time on both

Sides of my body.

It's most debilitating,

And so exhausting.