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Current Mood: could be better...
Current Music: (none)
NOTE: 2021 05 29 22H21 EST Ramblings 556 -
Ramblings 556
Written 2021-05-30
- been on waiting lists for specialists since December... suspected diagnosis is hEDS, a degenerative condition which affects the connective tissues of the body...
When a simple walk
Is an activity that
Has the ability
To injure your legs
You know something
Is not quite right
When every part
Of each of your extremities
Are strained by movement
And want to shatter
To pieces under the pain
While recovery is increasingly
Difficult to achieve
It doesn't leave much doubt
That your body's embarked
On a path to clear debilitation
So now finding a way to adapt
Is the supplemental challenge
You must learn to deal with
For losing your body's
Good usage isn't easy to accept
And aside the constant pain
Sadness and frustrations have
Ways of taking all breathing room
Current Mood: feel like writing in French... random...
Current Music: (none)
NOTE: 2021 05 28 11H58 EST Énigme - french ramblings...
Énigme
Written 2021-05-28
pas pour faire ma tannante
mais si cela continue
j'vais développer un complexe là
ça veut dire quoi
sans jamais dire
quoi que ce soit ?
tant d'interprétations possibles,
et bien sûr, les miennes ne
penchent jamais vers le meilleur
comme j'ai dit, pas pour
faire ma tannante, mais là,
qu'est-ce que j'dois comprendre ?
Current Mood: alright
Current Music: (none)
NOTE: 2021 05 28 09H57 EST Vaccine (follow up) -
Vaccine (follow up)
Written 2021-05-28
- follow up to my post "Vaccine Hopes"...
I thought I should give a
Follow up about my vaccine
And how it turned out
Concerning side-effects.
I'm happy to say that my
System actually tolerated it!
There were no adverse effects,
Just a disabled arm for 2 days.
It was most painful in a way
That I couldn't move or use
My arm during this period.
It was the strangest thing.
But that's it.
Nothing else.
So, all's good!
A huge relief.
Next dose in four.
Current Mood: alright
Current Music: (none)
NOTE: 2021 05 27 11H22 EST First Plane Travel -
First Plane Travel
Written 2021-05-27
- reworked this one a little 'cause my first version was a bit more all over the place 'cause of my anxiety trying to present the experience ...
the first plane travel was incredibly overwhelming, but I did it... I always joke with my douce moitié that he surely doesn't doubt how much I love him after that ;) ... sorry, a bit long and rambly, but it was quite the experience...
Ok, try to picture this, if you will:
Thirty years living with agoraphobia et al.,
But another thing about me: since toddlerhood,
I somehow became very fearful of man-made
Things (bridges, overpasses, etc); like I knew
These things could crumble at any time.
So you can probably guess, forget not having
My feet firmly on solid ground, so no way in hell
I'd sit thousands of kilometers up in the air.
But due to circumstances, my douce moitié was not home,
He'd been living in England for months on end in order to
Be able to work, so it would have to be me who travels in
Order for us to be able to see one another. And so, against
Every odd, I took a plane to England... on my own.
I was sick for a few weeks before the flight.
My nerves completely shot, and I'll spare
You the details of my stomach's antics,
But I really wasn't sure I'd manage it.
I was terrified; the thought horrified.
So, I spent a lot of time talking to myself,
And working really hard to not let these
Problems of mine ruin the best opportunity
Of my life to travel to England; but not
Only that, to be with my love again!
I missed him too much. But my terror
Was a mighty and formidable opponent,
So, for days it went on, and on the day,
It still wasn't any better, but I pushed on,
Little step by little step. Since I'd never
Flown in my life, there was the whole
Process to suss out as well, oh what fun.
But I surprisingly didn't do too bad. Still,
I sat on the plane; really not feeling good.
For seven hours, it was a ride from hell.
I spent the whole time keeping my nerves
In check so as to not lose my cool, so to speak.
Having a panic attack breakdown is not the time.
I did a lot of breathing exercises, and distraction
Methods all throughout the journey, but
Here again, I was doubtful at times that I'd manage.
But I did. However, you can probably guess
That I must have looked a sight on my arrival,
And I evidently did, 'cause border control
Retained me, searched my baggage, read my journal(!),
Took my fingerprints and photos, and made me
Wait in a locked room for eight long hours!
Apparently my answers to the agents weren't
Satisfactory. I haven't the slightest clue what
It is that I said which made them suspect my
visit to their country. This nearly stretched
Me beyond my capacity to not breakdown,
It was way too nervewracking. But, they stamped
My passport in the end, and wished me a good time.
My douce moitié was so livid - he nearly got
Himself arrested at the airport! (so not his nature!)
Profusely apologizing for such a rude welcome,
He was so beyond embarrassed, blood boiling,
But to be honest, I was too relieved and
Happy to be in his arms at long last.
We quickly found our center together.
I also told him to not apologize for something
He had nothing to do, you know, as Brits do (wink).
He's just a darling heart that man, I smile thinking of this.
The first plane travel was a truly gruelling experience,
And although I was able to manage all of my symptoms,
It didn't lessen with the subsequent flights I had to take.
It's not as intense when I travel with my douce moitié,
But I don't think I will ever, ever enjoy travelling this way.
Current Mood: alright
Current Music: (none)
NOTE: 2021 05 27 08H32 EST Ramblings 555 -
Ramblings 555
Written 2021-05-27
- phasing out...
After a while of nonsense
being spewed out, and
overtaking the waves in the air,
it all starts to sound, to me,
like the adults in Peanuts...
Current Mood: undefined
Current Music: "Hit Between the Eyes" - Scorpions
NOTE: 2021 05 13 12H06 EST Ramblings 554 -
Ramblings 554
Written 2021-05-13
it's no use, i think this is done.
there's really nothing of the fray
that is left to be expressed.
it's all been said a thousand
times over, if not millions,
so it's really not necessary
to devise more ways to say
the same goddamned things.
'cause where's the interest?
it's no use, i've lost mine
a very long time before now.
it only feels like wastes of time
distracting the ultimate goal
of life's natural pointlessness.
adding mine to the mix?
well, that's more than old...
Current Mood: tiens, a bit more stress, pour faire changement...
Current Music: (youtube)
NOTE: 2021 05 12 10H11 EST Vaccine Hopes -
Vaccine Hopes
Written 2021-05-12
- vaccines aren't medicine, per se, but still a foreign agent my system will have to acquaint itself with...
I'm not a really sick girl on a daily basis,
but if I do get sick, things can go very bad.
This is because my system is immunodeficient.
All viruses I've ever had have always
developed into acute pulmonary infections
that require heavy doses of meds to clear up.
So, with the current situation we're all living,
I'm an absolute nervous wreck at the
possibility of contracting this new one...
I'm really looking forward to the vaccine
and I'm so happy I have my appointment (May 20th),
but there's something else about my system:
it has the tendency to react to all forms
of medication introduced in my body
with usually the most severe side-effects.
I'm not sure if this vaccine will have
that kind of effect for me, so I'm a bit
stressed about the aftermath of getting it.
But I'm weighing the potential outcomes:
Bad side-effects that will pass, then protect,
Or turn out to be critical, and harm me.
Or get the virus, which thrives in our lungs...
There's no reasonable expectation
that my system would survive its attack.
As I said, I'm happy I'll be getting the vaccine,
But I'm also anxious about how I'll react.
I'm hoping to all hopes it won't be too bad.
Current Mood: qui sait...
Current Music: (none)
NOTE: 2021 03 29 10H04 EST Inevitable -
Inevitable
Written 2021-03-29
- living with social phobias and agoraphobia ...
The isolation is always two-fold:
caused by self,
and with time,
from others drifting away.
Current Mood: taking a break, and probably weird...
Current Music: (none)
NOTE: 2021 03 25 10H34 EST Mask -
Mask
Written 2021-03-25
- living with social phobias and agoraphobia ...
The crazy thing is
I actually derive a
Sense of security
About going out
With a mask to
Cover my face.
It brings my fears
Down quite a few
Notable notches.
It's kind of nice
To be rid of that
Nervous energy
Coursing through
Me about being out.
I know, it's probably
Not the best response
In the long-run for me,
But in the meantime,
It's unexpectedly working
Out nicely for my nerves,
And I'm going with it.
Current Mood: tired but alright...
Current Music: (youtube)
NOTE: 2021 03 22 15H01 EST Capitale-Nationale? -
Capitale-Nationale?
Written 2021-03-23
- had a discussion with a friend about this Capitale-Nationale business, who surprisingly went into the spiel about our French "nation", our pride, our roots, as if there was no political sentiment to what he was telling me, and as if I wasn't French. I don't care about the political side of things. Separatist camp or the others. I was referring to the actual meaning of words... "National" belongs to country, not province, so it's just incorrect to say otherwise? ...
When you enter the city of Québec
There are road signs welcoming
Drivers into the Capitale-Nationale.
When you fill out a form online
And need to select your region
The only choice is Capitale-Nationale.
When you receive mail brochures
Espousing the beauties of my city
The official logo is Capitale-Nationale.
It may not be very Québécois
To say this, but has everyone
Fallen onto their heads, or what?
Québec city is NOT the capitale nationale!
The national capital has always been Ottawa!
So annoying all of this sanctioned nonsense.
When I object, I'm promptly put in my place,
And explained about our French nation,
As if I'm not from the French nation...
Born and raised here; my last name wears an accent aigu;
I started learning English when I was twelve.
Sure, I wouldn't understand about all that.
It's just that, dans les faits, irrefutable ones,
Our capital has never been the national capital.
Last I've ever known, Québec is part of Canada,
And Québec city is just the capital of the PROVINCE.
It gets on my nerves when the untrue's so nonchalantly made
Into every day normal as if it was anything close to truth.
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